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Alice Guerreiro

Não poderia deixar de agradecer aos mimos que recebi da @klin_oficial e @moisesfeitosamf pelo carinho e esses luxuosos sapatinhos que vão embelezar ainda mais os meus looks...o meu muito OBRIGADA!!! Fiquei muito feliz. ❤️😍 #klin #bebeluxuosa #Sapatinhos #ameimeuspresentes #bebefeliz #bebefashion #bebeblogueirinha #bebeblogueira #downsyndrome #inclusao #maisamor #menospreconceito #empoderar #t21 #familia21 #somostodoscromossomos21 #Deusnocomando #mundodealiceguerreiro

Sara Down Up

Hoy, por primera vez, quise entrar sola a la piscina... bueno, con la profe, pero sin mi mamá🤗 y eso que recién es mi segunda clase desde que volví, eso es tremendo logro para mi🙌🙌🙌. Y así aprendo cómo salirme de la piscina. Prácticamente no necesité ayuda💪😊. #mepongotusanteojos #arribalainclusion #sindromededown #downsyndrome #trisomy21 #t21 #downsinmitos #unidosporlaexperienciaup #cadadiamejor #Chile #trisomia21 #pictureoftheday #instadaily #instagood #me

Chelsea and Phoebe 'Rocket'🚀

photo by Chelsea and Phoebe 'Rocket'🚀 with description
            I just put my baby to bed for the last time tonight. My last baby. Tomorrow she will wake up a toddler. Birthday eves are always the worst for me. I always wonder did I do enough to savor all of the moments this year brought. This past year with her has been one of THE BEST years of my life. The heart of our family was born. She has brought us all so much closer and changed us all in a way I never thought possible. I never knew that we could love each other more than we did, or be happier than we were before we had her. I always thought we had it all and felt so lucky and blessed. But this girl brought even more joy. We are thankful for this little beauty. Her personality is so big it barely fits inside of her. She smiles at everyone and brings warmth to all the hearts. I am going to FLOOD everyone's social media tomorrow so be prepared.

I just put my baby to bed for the last time tonight. My last baby. Tomorrow she will wake up a toddler. Birthday eves are always the worst for me. I always wonder did I do enough to savor all of the moments this year brought. This past year with her has been one of THE BEST years of my life. The heart of our family was born. She has brought us all so much closer and changed us all in a way I never thought possible. I never knew that we could love each other more than we did, or be happier than we were before we had her. I always thought we had it all and felt so lucky and blessed. But this girl brought even more joy. We are thankful for this little beauty. Her personality is so big it barely fits inside of her. She smiles at everyone and brings warmth to all the hearts. I am going to FLOOD everyone's social media tomorrow so be prepared. #rocket #downsyndrome #upsyndrome #downsyndromeawareness #theluckyfew #nothingdownaboutit #t21 #downsyndromelove #bornthisway #meanttobe #savedownsyndrome #downsyndromeisbeautiful #wouldntchangeathing #morealikethandifferent #dontlimitme #bethechange #happinessis #taketheupgrade #homiewithanextrachromie #soextra #shouttheirworth #thankful

2boysママ

photo by 2boysママ with description
            ・
12月10日は月に1回の外来の日。
最近はご機嫌でミルクもゴクゴク飲むし、
在宅酸素の出番もあまり無かったので、
いつもの外来と思って行ったら、まさかの緊急入院😭
SpO2が70代前半で、このまま家に帰すのは〜って。
いつもと変わらない様子だっただけにビックリです。

寝てる時はいいけど起きるとSpO2が下がるので、
昨日の夜は鎮静剤で眠らせて気管挿管して呼吸サポートを
したそうです。
・
いろんな同意書にサインして、そこには合併症とか
マイナスなことばかり書いてあって、私の気持ちが
追いついてません。
・
帰ったら寝てるはずの布団にりょうちゃんがいない…。
洋服についた匂いを嗅いで泣く😭😭
お兄ちゃんの無邪気さに泣く😭😭😭
ついこの前ハーフバースデーのお祝いしたのに…。
・
まだ先だと思ってた入院や検査、手術がいきなり
目の前に迫ってきて、気持ちが追いついてません。
挫けそうです。折れそうです。ただ祈ることしか
出来ないけど、今日は笑顔で会いに行ってきます😊😊
・
さっき電話があって、心カテはせずに、シャント術の
ような姑息手術をする事になりました。
午後から主人と説明を聞いてきます👂
あー、今日も泣く😭😭😭
・

・ 12月10日は月に1回の外来の日。 最近はご機嫌でミルクもゴクゴク飲むし、 在宅酸素の出番もあまり無かったので、 いつもの外来と思って行ったら、まさかの緊急入院😭 SpO2が70代前半で、このまま家に帰すのは〜って。 いつもと変わらない様子だっただけにビックリです。 寝てる時はいいけど起きるとSpO2が下がるので、 昨日の夜は鎮静剤で眠らせて気管挿管して呼吸サポートを したそうです。 ・ いろんな同意書にサインして、そこには合併症とか マイナスなことばかり書いてあって、私の気持ちが 追いついてません。 ・ 帰ったら寝てるはずの布団にりょうちゃんがいない…。 洋服についた匂いを嗅いで泣く😭😭 お兄ちゃんの無邪気さに泣く😭😭😭 ついこの前ハーフバースデーのお祝いしたのに…。 ・ まだ先だと思ってた入院や検査、手術がいきなり 目の前に迫ってきて、気持ちが追いついてません。 挫けそうです。折れそうです。ただ祈ることしか 出来ないけど、今日は笑顔で会いに行ってきます😊😊 ・ さっき電話があって、心カテはせずに、シャント術の ような姑息手術をする事になりました。 午後から主人と説明を聞いてきます👂 あー、今日も泣く😭😭😭 ・ #ダウン症 #ダウン症候群 #ダウン症児のママ #ダウン症ボーイ #t21 #チーム21 #downsyndrome #生後6か月 #ハーフバースデー #先天性心疾患 #ファロー四徴症

nao_mama

☆ ウォーキングレッスン👠 前回教えてもらったことを 家で練習したからか 少し?様になってきた感じ?✨✨✨ . . 12/23 品川きゅりあん大ホールで 開催される⭐️viewステージ⭐️ LB-MODEL SCHOOLの ハンディキャップクラスで 「障がい者モデルSHOW」 に出ます👍 . . 中々経験できる事ではない そんな大きなステージで 歩けるなんて… 菜桜には出来るのか?? ま、親の気持ちなんてわかるはずなく 菜桜の性格からしたら 楽しんじゃうタイプだよね(笑) . . とにかく練習だーー‼️ . . ⭐️⭐️Angel★Smile⭐️⭐️ . . ☆ #ダウン症 #ダウン症ガール #ダウンガール #21トリソミー #downsyndrome #trisomy21 #t21 #angelsmile #nao #fifteenyearsold #特別支援学校高等部1年 #lbmodelschool #障害者モデル #ダウン症モデル #天使の羽が羽ばたくとき #誰にでも夢はある #夢見ることは自由 #頑張れ菜桜 #いろんな事にチャレンジ #頑張ってみよう #ファッションショー #viewステージ @lb.modelschool @chika.chika7 @studioerikashizuoka @studio_erika @erikaao

いっちょこぴ〜

  寝起きで🤤   登校前の兄から   メモ帳をもらい   喜び微笑む妹の図👦🏻❤️👶🏻     #ダウン症 #21トリソミー #t21 #downsyndrome #polydactyly #多指症 #1歳7ヶ月 #年の差兄妹 #氣が散りそうなメモ帳 #もらって満足 #兄に微笑みかける #この笑顔欲しさに何でもあげようとする兄 #見つめ合いなかなか登校せず #早く行け遅刻する

👑 Alécio Benjamin 🎂 5 anos

🎅 Ontem fui fazer uma visitinha ao Parque dos Esquilos do @salvadorshopping, uma decoração temática com circuito irado de brincadeiras, e adivinha se eu não fui? Claaaaaaro! Meu presente de Natal pra mamãe é mostrar que todo esforço dela valeu a pena! 😝 E olhe que msm tio Pedro precisando ir comigo, afinal são as regras deles, eu fui muito destemido e corajoso, e enquanto o tio se ajeitava, eu partir a mil, queria era ir sozinho! 🤣 Na tirolesa fui logo me posicionando, sem esperar ninguém! Ouxi, não querem autonomia? Então tome! 🤙 Ahhh... e só não fui no jardim encantado pq dia de segunda não abre. Mas eu vou voltar, claro! E a dica do tio Pedro é, se puder, vá terça ou quarta que é mais vazio! 😉 Agora, deslizae👉 pra ver o quanto me divertir! 🎡🎢🎠🎄 . . . . . . . . . . #AlecioPubli #obrigadosenhor #amoNatal #entaoenatal #jaéNatal #papainoel #inclusao #mesuperando #deontem #sindromededown #downsyndrome #cromossomo21 #t21 #porqueoamornãocontacromossomos #47cromossomos #bahiadown #serdiferenteénormal #qualadiferença #juntossomosmaisfortes #somoscapazes #somostodosdiferentescomdireitosiguais

Paediatric OT Coaching

photo by Paediatric OT Coaching with description
            Happy hump day everyone, we are getting that little bit closer to the end of the term. 
Today’s holiday gift idea is the super awesome ‘Im Toy Melody Mix’ 🥁 
Babies, toddlers, children and adults can all benefit from playing musical instruments. Playing instruments improves sensory integration, language development, speech, listening skills, fine and gross motor skills, developing self-confidence and making decisions + so much more. 
Check out the @thesensorystudioau for Im Toy Melody Mix + so much more 🤗 . . . . .

Happy hump day everyone, we are getting that little bit closer to the end of the term. Today’s holiday gift idea is the super awesome ‘Im Toy Melody Mix’ 🥁 Babies, toddlers, children and adults can all benefit from playing musical instruments. Playing instruments improves sensory integration, language development, speech, listening skills, fine and gross motor skills, developing self-confidence and making decisions + so much more. Check out the @thesensorystudioau for Im Toy Melody Mix + so much more 🤗 . . . . . #occupationaltherapy #OT #otsoninstagram #parentcoaching #parentsupport #parentlove #parents #sensorymotor #AUTISM #autismawareness #add #adhd #aspergers #spd #sensoryprocessingdisorder #t21 #downsyndrome #cp #cerebralpalsy #learningdifficulties #22q #borntostandout #thrivenotsurvive #socialthinking #SocialInclusion

Milo

photo by Milo with description
            Milo gets routine bloodwork done every 6 months just to keep an eye on things. His thyroid levels came back flagged during his last testing. It's common for kids with Down syndrome to have thyroid issues, so it wasn't necessarily a huge concern, but his levels had always been pretty consistent. He had woken up with a cold that next morning after the blood was drawn so we wondered if that could have affected the results. I took him to the endocrinologist yesterday to have additional bloodwork done, and the results came back today within that normal range. We have to have it rechecked again in 6 months, then if all goes well, we don't have to see the endocrinologist anymore. We have been extremely fortunate that Milo hasn't had any major health concerns.  Obviously taking thyroid medication isn't the worst thing in the world, but I'll admit, the thought of him starting medication at a young age really bummed me out. So, fingers crossed his levels stay within range. 🤞🤞 On another note, don't assume that just because a person has Down syndrome means they are weak. There had to be 2 nurses to hold him down to take his blood. They kept commenting on his strength. He's the sweetest little guy, but if you try to get him to do something that he doesn't want to do, he will legit fight you! And he'll probably win! 🤣

Milo gets routine bloodwork done every 6 months just to keep an eye on things. His thyroid levels came back flagged during his last testing. It's common for kids with Down syndrome to have thyroid issues, so it wasn't necessarily a huge concern, but his levels had always been pretty consistent. He had woken up with a cold that next morning after the blood was drawn so we wondered if that could have affected the results. I took him to the endocrinologist yesterday to have additional bloodwork done, and the results came back today within that normal range. We have to have it rechecked again in 6 months, then if all goes well, we don't have to see the endocrinologist anymore. We have been extremely fortunate that Milo hasn't had any major health concerns. Obviously taking thyroid medication isn't the worst thing in the world, but I'll admit, the thought of him starting medication at a young age really bummed me out. So, fingers crossed his levels stay within range. 🤞🤞 On another note, don't assume that just because a person has Down syndrome means they are weak. There had to be 2 nurses to hold him down to take his blood. They kept commenting on his strength. He's the sweetest little guy, but if you try to get him to do something that he doesn't want to do, he will legit fight you! And he'll probably win! 🤣 #GoMiloGo #downsyndrome #downsyndromeawareness #nothingdownaboutit #downrightperfect #t21 #t21journey #lovedoesntcountchromosomes #loveeverychromosome #theluckyfew #homiewithanextrachromie #thathairthough #dsdn #instababies #babiesofinstagram #fighter

Alyse and Flick

This week Flick starts her first dance class EVER! I’m excited and nervous. (Swipe to see the back of her leotard, it’s gorgeous). I asked some experienced moms if I should inform the instructor Flick has Ds. In response I got: “for what? And “just show up”. I loved those responses and it was my first thought, but I second guessed myself. So we will just show up. She will either love it, or like with music therapy (loves music, hated music therapy). If she doesn’t, well she’s so dang cute in this, it’s all worth it. 😂 . . . #downsyndrome #downsyndromeawareness #instatoddler #toddlerlife #toddlerlifestyle #toddlerfashion #motherhood #motherhoodunplugged #specialneedsparent #dancemoms 😂

Daddy Yankee

Este video me lo he disfrutado un millón. El efecto de la música trasciende los límites. La vibra de “CON CALMA” es especial. #Repost @zes_luzmahg ・・・ #concalma La vida se toma con CALMA🔥, se disfruta y se goza, tu como lo haces? 🤔 Yo a través de la música el baile y de personas como mi hermano que con su transparencia te recuerdan que lo importante es sentirte aceptado por ti mismo🤗 Con esa actitud, todo se puede!!! Gracias @rmz1_fanny por tu clase los éxitos de @daddyyankee son garantía para sacar el power💥 #downsyndrome #sindromededown #uncromosomamas #unityindiversity #Inspirando #inspiration 💚zumbalove💚movemoselmundo💚 @zumba @zumbabeto @albertoperlman #zumba #wemovetheworld #zumbahappy #zumbafun #zumbachihuahua #zin @zincommunity @msnancyny @joseramvar_ #concalmachallenge @ricardohg_t21

Super Noah Jacob

Decided to get Noah a second set of glasses in case the others were lost or damaged. I don't want to go through what we went through during our last trip. Do you guys like them? I think he looks older 🤓 . #ds #DSbaby #downsyndrome #pulmonaryhypertension #1in100 #Tri21 #trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #RockYourSocks #downsyndromerocks #downsyndromelove #avcanalrepair #chdawareness @savedownsyndrome @frobabies

Alyse and Flick

Bad mom days are the worst days. We are always hard on ourselves, but I’m talking about the real tough days. The days when you cry so hard you can’t breathe, in fact you’ve probably spent most of the day trying to catch your breath. The day when your fuse is short. When your patience never showed up that morning. The days when you feel like you don’t spend enough time with your children/you don’t get anytime to yourself. The day when you’re yelling and in the middle of yelling feel immediately guilty for doing so. When you just need a reset. When you need a friend. When you need a break. I have those days too. Days when I question myself about everything. No one wants to publicly talk about these days because it’s when we are at our most vulnerable and fear of being judged, but if we did, maybe just maybe we would stop judging and start connecting. You are an amazing parent, a wonderful person, and it’s okay to have a bad day. Reach out to your friends to vent, write about it, cry about it. I’ve heard the saying “crying won’t make it clean” but sometimes it’s the cleanse we can all use. It These days just mean you’re doing a much better job than you think. . . #downsyndrome #downsyndromeawareness #instatoddler #toddlerlife #toddlerlifestyle #toddlerfashion #motherhood #motherhoodunplugged #parenting #parenthood #specialneedsparenting

Alyse and Flick

photo by Alyse and Flick with description
            Did to the 50 mph winds, I felt the need to share this brilliant photo of my girl. I don’t have any updates from that abhorrent story I shared yesterday as I don’t know the family, but I am so proud of all who have reached out to the school to demand answers and consequences from those individuals. Jack and others like him, like Flick are worthy of respect, kindness, and fair treatment. She is not less than. She is human and should be treated as such. So let’s keep fighting this fight together. As long as I have a speaker, or voices WILL BE HEARD. .
. .

Did to the 50 mph winds, I felt the need to share this brilliant photo of my girl. I don’t have any updates from that abhorrent story I shared yesterday as I don’t know the family, but I am so proud of all who have reached out to the school to demand answers and consequences from those individuals. Jack and others like him, like Flick are worthy of respect, kindness, and fair treatment. She is not less than. She is human and should be treated as such. So let’s keep fighting this fight together. As long as I have a speaker, or voices WILL BE HEARD. . . . #justiceforjack #downsyndrome #downsyndromeawareness #instatoddler #toddlerlife #toddlerlifestyle #toddlerfashion #motherhoodunplugged #motherhood #worthy #humane

Super Noah Jacob

photo by Super Noah Jacob with description
            Who else licks their fingers before turning the page? 😂😂😂
.
.
I was told by another Down Syndrome parent that this is the time that Noah will mimic a lot of our behavior. Thisjust happens to be one of mines 😊

Who else licks their fingers before turning the page? 😂😂😂 . . I was told by another Down Syndrome parent that this is the time that Noah will mimic a lot of our behavior. Thisjust happens to be one of mines 😊 #hepaysattention #amazesmeeveryday #copycat . . Morning! 💙💛 . #ds #DSbaby #downsyndrome #pulmonaryhypertension #1in100 #Tri21 #trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #RockYourSocks #downsyndromerocks #downsyndromelove #avcanalrepair #chdawareness @savedownsyndrome @frobabies

Pope Francis

photo by Pope Francis with description
            EN: Those who care for the little ones are on God's side and defeat the culture of waste.

PT: Quem cuida das crianças está do lado de Deus e vence a cultura do descarte.

ES: Quien cuida a los pequeños está del lado de Dios y vence la cultura del descarte!

IT: Chi si prende cura dei piccoli sta dalla parte di Dio e vince la cultura dello scarto!

FR: Celui qui prend soin des petits est du côté de Dieu et vainc la culture du déchet.

EN: Those who care for the little ones are on God's side and defeat the culture of waste. PT: Quem cuida das crianças está do lado de Deus e vence a cultura do descarte. ES: Quien cuida a los pequeños está del lado de Dios y vence la cultura del descarte! IT: Chi si prende cura dei piccoli sta dalla parte di Dio e vince la cultura dello scarto! FR: Celui qui prend soin des petits est du côté de Dieu et vainc la culture du déchet. #downsyndrome #SíndromeDeDown #sindromedidown #syndromededown #SíndromedeDown #zespółdowna

Super Noah Jacob

Finally waiting on discharge papers to leave the hospital. Noah has a slight case of pneumonia so doctors feel with antibiotics, he should be able to fight this infection at home. I know Thanksgiving is on Thursday but today I give thanks for progress. Progress because a year ago, a slight pneumonia would've kept us in the hospital for almost a month. I asked the doctors if he could be around family and they said yes so if he feels better, we will be able to spend Thanksgiving as planned. Despite his progress, I don't take anything for granted. If I over react its because I want to give Noah the best chance at anything that may come his way. Thank you Lord, thank you ❤🙏 . #ds #DSbaby #downsyndrome #pulmonaryhypertension #1in100 #Tri21 #trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #RockYourSocks #downsyndromerocks #downsyndromelove #avcanalrepair #chdawareness @savedownsyndrome

autism_fighters

Shoutout to Dante (@livelikedante). Check him out trying a little turkey and mashed potatoes for the first time 🙌🏼🙌🏼🙌🏼👏🏼👏🏼👏🏼 Big step. Don’t give up on your kids trying new foods. It’s a process and usually takes introducing something dozens of times. Keeping at it will pay big dividends. I’ve seen some super rigid diets cracked 😂😎 A proper diet is huge for helping someone with special needs thrive. ✅ #thanksgiving #specialneeds #AUTISM #autismawareness #autismacceptance #downsyndrome #disability #ability #inclusion #diet #health #Wellness